Prayers and good thoughts this week if you don't mind!

Discussion in 'Announcements & Feedback' started by ChevyFan, Apr 2, 2014.

  1. ChevyFan

    ChevyFan Administrator Staff Member

    So we have an appointment with a pediactric Orthopedic Onologist on Friday. That's one person who I hoped that we never would have to go see, but alas we are going for my 9 year old. Turns out they're pretty sure that he doesn't have cancer, but rather a very large cyst/tumor that's growing on his pelvis. Either way, I'm hoping that they don't say major surgery, but from what we've read that's probably the #1 option. Cut it out. Bone grafts. Maybe something to stabilize it. 3 to 6 month recovery.

    Anyhow, it's really stressing me out, so I need to chill out for a while and I'll be on and off the site for the next week or two. Maybe I'll be visiting Columbus, Ohio where they have a very good Children's hospital there where they have some newer technology and studies up there that might make this thing not so bad. Anyhow, never would turn down prayers and good warm fuzzy thoughts for something like this.

    I'm sure I'm not the only one who's had a child go through something like this, but I think I might turn to drinking alot again, lol. But that's all I have to say for now, if you need something one of the moderators can help out (they've been doing a great job anyhow).
  2. RayVoy

    RayVoy Active Member

    You have our thoughts and wishes for a speedy recovery, good luck.
  3. the phantom

    the phantom New Member

    Everything will work out [MENTION=1]Steve[/MENTION]. Drinking is not going to solve any problem it will just kick the can down the road and dent it all up so thats not an option.(Im assuming you were joking when you mentioned that so I will laugh)It sounds like you caught it early enough to get the problem resolved so keep us updated on how things go and prayers to your son and family dealing with this.
  4. 99'HEARTBEAT

    99'HEARTBEAT Moderator

    Steve.....My Thoughts and Prayers, to you and your Family.
  5. ChevyFan

    ChevyFan Administrator Staff Member

    Got some good news. Talked to a Pediatric Orthopedic Oncologist and he says that it's a non-aggressive cyst, might not have even done that much damage to the bone underneath, but we had a CT scan done today (wow, that's expensive for 5 minutes!) and next Friday they going to try a much simpler and non-drastic surgery where they just go in with needles and try to get the bone to heal with some minerals and some other stuff that I'm going to have to look up. :)
  6. summitwhite11

    summitwhite11 New Member

    It sounds like the out look is good, that's fantastic, the up side is kids are really tuff little dudes and dudettes, hang in there, be patient, and know we are thinking and praying with you.
  7. BurbanMan

    BurbanMan Member

    Wow! Prayers sent steve
  8. Caddiac

    Caddiac New Member

    I will definitely keep you in my prayers. It is hard to be on the side lines and watch when you, as a parent, want to take control and fix things. But it really comes down to God and the skilled doctor. The former having all the influence, the latter acting on His behalf.

    Keep this thread up to date. I sure everyone is concerned and whats to know how things are going.
  9. ChevyFan

    ChevyFan Administrator Staff Member

    Thanks guys. Now all I gotta do is pay for it all. Jee wiz ct scans are about $500 per minute.
  10. Goldie

    Goldie New Member

    Will keep you and yours in my thoughts and prayers. Just remember drinking won't solve the problem. After the hangover is gone, you'll still have to face the problem. If there is anything I can do just pm me.
    Tom
  11. ChevyFan

    ChevyFan Administrator Staff Member

    Yeah. It's just been a roller coaster. Now we just got results that its probably the worse off the two types of cysts.
  12. Goldie

    Goldie New Member

    Still thinking good thoughts for you and yours! What's the next step?
  13. ChevyFan

    ChevyFan Administrator Staff Member

    Next step is surgery scheduled for this Friday. However, that surgery is ONLY for a certain type of bone cyst called a Unicameral bone cyst (UBC) and the CT scan's notes from the Radiologist suggest that it looks like an Aneursymal Bone Cyst (ABC), and the surgical intervention planned is not going to work for the ABC, only the UBC type of cyst.

    Now, there is a place up in Ohio that does treat the ABC with a new technique, where they fill it up with a type of antibiotic called Doxycycline and then later fill it up with some minerals that later go and make new bone tissue.

    - - - Updated - - -

    ... however on a different note, I mentioned in some previous posts that my dad was ill. Looks like he's a candidate for at least one clinical trial with a group in Phoenix that's been able to treat his specific type of cancer, he starts it next week looks like.
  14. Goldie

    Goldie New Member

    Frequent, more, and in large quanities of thoughts and prayers still headed your way! Keep you thoughts positive!!
  15. dsfloyd

    dsfloyd New Member

    Prayers being sent your way. Yes medical can get expensive, but most will work with payments if needed. I hope all turns out well.
  16. ChevyFan

    ChevyFan Administrator Staff Member

    Surgery is tomorrow. I can't sleep.

    - - - Updated - - -

    Procedure is over. Waiting on recovery. Turns out it was a unicameral bone cyst ... which is the easiest to treat and the least damaging to the bone. However it was 8 cm by 8cm by 3cm in size. That's like 4in x 4in x 1in ... so that's a pretty big cyst.
  17. dsfloyd

    dsfloyd New Member

    Dang thats big. Glad it all worked out and it was the better of the two.
  18. Goldie

    Goldie New Member

    happy to hear about surgery going smoothly. One less thig to worry about.
  19. ChevyFan

    ChevyFan Administrator Staff Member

    They drained it and injected into the bone something called bone cement which is largely calcium triphosphate. That is just sitting inside the bone where the cyst was at. The goal is that the bone will start to absorb that material and will deposit it back down as new bone in the next two weeks there should be some type of indication of it worked or not.

    We just got home and I'm beat. Hardly could sleep last night at the hospital and got waken up a few times. Not to mention the stress of it all.
  20. Caddiac

    Caddiac New Member

    How's the little man holding up? I know the old man feels like he has been beat with a rubber hose. (Probably less painful and stressful than your kid having surgery too.)

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